hearty tales

sharing stories of chronic heart disease

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SUPPORT & INFO

If you’re looking for further information or support relating to heart disease, the organisations below might be able to help.

  • British Heart Foundation
  • Pumping Marvellous
  • Chest, Heart & Stroke Scotland
  • The Somerville Foundation
  • Cardiomyopathy UK
  • British Society for Heart Failure
  • Cardiac Risk in the Young
  • NHS
  • Children’s Heart Federation

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New blog post today about my new year-long (that's the goal anyway!) project, recording my daily #HeartFailure #symptoms and #SideEffects in the medium of colour-coded cross-stitch 😍 Follow the link in the bio to find out what inspired this project and how it's been going so far.
Heart Haiku, our collaborative patient-produced zine, is back and looking for contributions for issue 7 on the theme of "Medical Spaces and Places." We want to hear about any location involved in the treatment of your heart condition, from the hospital canteen to the queue in your local pharmacy. Can you evoke that place's atmosphere in only 17 syllables?! Go and visit the post called" Tick Tock, it's haiku o'clock" on the blog (link in bio) for full details of how to take part. Can't wait to see what you come up with!
Phew! This week I've added long overdue image descriptions to all my Instagram posts. From now on I'll include image descriptions at the time of posting. If there isn't an image description in the main text of a post, you will be able to find it in the comments. If I ever forget (might take a while for the habit to stick) then feel free to pull me up about it!
Neil: "Once [the ICD] has been in a long time [...] the wires [...] get covered in all the, sort of, gunk that goes round your body and it becomes less and less of a, kind of, foreign body over time, because [...] I suppose like a ship in the sea, it gets covered...it gets covered in barnacles and all these type things..."

Hearty Bloggers

  • Me and my CHD
  • Sarah Is Old At Heart
  • Heart Sisters
  • Sudden Cardiac Arrest UK
  • Heart of a Giant
  • The Shape Of My Heart
  • Optimistic Heart
  • The Heart of the Journey

Tags

anatomy cardiac devices cardiology collaboration craft creative writing creativity cyborgs exercise haiku have your say heart me/personal medication patient experience poetry symptoms visual art women zine
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